NEVER (NorthEast Voices for Error Reduction) is made up of member patient safety and advocacy organizations located throughout the northeast. The mission of NorthEast Voices for Error Reduction (NEVER) is the empowerment of patients and the elimination of healthcare harm by: advocating for patient interests in healthcare delivery; educating the public, the media, elected officials about patient safety, working toward a transparent and accountable healthcare system.
State Disclosure Reports
- New York Hospital-Acquired Infections Reports Source: New York State Department of Health (Saturday September 1, 2012)
Consumers Union Documents
- Response to Consumer Reports’ questions from Brooklyn Hospital Center
The Low-Down Dozen: Hospital responses to CR (Brooklyn Hospital Center, Brooklyn, NY)
- State Medical Error Report Links
Reports from the states with laws requiring public reporting of medical errors.
- New York-area hospitals do poorly in patient safety (report)
Consumer Reports rates hospitals in and around the Big Apple. Many hospitals in the New York City area do a poor job on four key measures of patient safety, according to a new Consumer Reports investigation.
- New York City hospitals do poorly in patient safety
Consumer Reports issues safety ratings for New York City-area hospitals. Of the 50 lowest-scoring hospitals nationwide in four key patient safety measures, 30 were in the New York City area, which includes the five boroughs as well as neighboring communities in Westchester, Long Island, and New Jersey. And the five lowest-rated hospitals nationally were all in the NYC area, too.
- State Hospital Infection Public Reporting Laws
Summary of state laws hospital infection reporting laws.
- Testimony of Jim Guest President, Consumers Union, before the House
On PDUFA, Risk Evaluation & Mitigation Strategies, Clinical Trials, and Advisory Committee Conflicts.
- Battle for drug safety moves to House floor
A March 2007 Consumer Reports national poll found that more than 60 percent of Americans agree that the Food and Drug Administration and Congress have failed to adequately protect them from harmful prescription drugs.
- Cost of hospital infections in New York
An analysis by Assemblyman Pete Grannis estimates the state and local Medicaid cost of hospital infections is $100-$200 million each year.
- Requiring Drug Companies to Disclose Marketing Expenditures to Physicians
Drug marketing emphasizes the latest and most expensive drugs even though these drugs may not be the best in their category according to the medical evidence.
Consumers Union News Releases
- Consumers Union Statement on IOM Medical Device Study
The medical device industry lobby has criticized a report on medical device regulation before it was published.
- New York report details hospital infection rates
Infection program serves as model because NY invested resources to assist hospitals and validate data
- In Light of Celebrex News, Consumer Reports Best Buy Drugs Urges Patients to Talk to Their Doctors about Alternatives
Web site chooses generic ibuprofen and generic salsalate as Best Buy Drugs
- “Mom, You Have to Trust Me”: Safe Patient Activist Published by JAMA Internal Medicine
Mary Brennan-Taylor, an activist with the Safe Patient Project since the tragic death of her mother in 2009, has just had an article published by JAMA Internal Medicine, wherein she details in a powerful narrative the sequence of events that took her mother’s life.
- You Saved New York’s Physician Profile Website!
Thanks to your support, we convinced New York lawmakers to keep New York’s Physician Profile website.
- Consumer voices to be heard at national hospital infection meeting
Meet the eleven consumer advocates who will be attending a U.S. Department of Health & Human Services (HHS)hospital infection meeting this week.
- “It’s not just statistics…it’s somebody’s Mom”
Hospital infections leave a lasting impact on the individuals and families who had to experience them. For Mary Brennan-Taylor, hospital infections took the life of her mother, Alice Brennan, who passed away in 2009 after entering the hospital for pain and swelling in her leg.
- Swine flu victim dies from hospital acquired infection
New York swine flu patient dies from a hospital-acquired infection in a local ICU where she had been successfully treated for swine flu.
- California Pharmacy Board Should Support Safer Medication Labels
Guest blog post written by Syed Sayeed, Policy Analyst at Consumers Union’s West Coast Office. CU is calling on California residents to submit comments to the Pharmacy Board by March 10th, in support of requiring all pharmacies to print important label information in at least a 12-point font size.
- Patient Safety Activists Represent Consumers at Presidential Health Care Forum
Four patient safety activists – all who have been personally affected by medical harm – were among the 164 participants in ABC’s televised health care forum held with President Obama. Understandably, they came armed with questions but didn’t get to ask them. So we wanted to give them a chance to get their questions in front of the public and lawmakers here on this blog.
- NYT calls for doctors to be included in Medicare non-payment rules
The New York Times came out Sunday with a strong call for making the new Medicare rule to stop paying for care needed after hospitals harm their patients apply to physicians too, stating the current policy lets “doctors off scot-free.”
- Drugmakers in hot water with NY Attorney General
A newly released study indicates that Vytorin, an expensive new cholesterol drug, is no more effective than an older drug Zocor. Although the drug makers got these results in April 2006, they failed to release them to doctors and the public–meanwhile earning $5 billion in revenue from sales of this drug last year. Sadly, we’re not shocked.
- Buried data on antidepressants
The New England Journal of Medicine issued a report that said a third of FDA-registered studies on popular antidepressants went unpublished.
- Perspective: Less is More Source: NEJM (Tuesday July 28, 2015)
Mary Brennen-Taylor recounts the events that led to her mother’s death, starting with medication that is potentially dangerous to older adults.
- New York can't let the bad doctors hide Source: NY Daily News (Monday February 23, 2015)
The NY Physician Profile website Cuomo wants to eliminate “was visited 35,000 times in December alone — a clear case of the public making good use of its right to know.”
- Why Does Cuomo Want to Shutter New York’s Doctor Report Card Site? Source: NY Times (Tuesday February 24, 2015)
“For the last few years, however, New York State has provided patients with some unvarnished relief. It came in the form of a website called nydoctorprofile.com. That website has been carrying information, good and bad, about most New York doctors.”
- Lockport woman’s loss becomes a lesson for all in the health care industry Source: Buffalo News (Sunday September 7, 2014)
Buffalo News highlights the patient safety advocacy of Mary Brennan-Taylor, a member of Consumers Union’s Safe Patient Project activist network.
- Surveys give low grades to ENH Lockport Source: Lockport Journal (Sunday August 17, 2014)
Patient safety advocate Mary Brennan-Taylor (member of CU’s Safe Patient Project network) and Consumer Reports’ John Santa quoted on controversy surrounding a Lockport hospital’s poor patient safety scores by Consumer Reports.
- 3 local hospitals get low grades from Consumer Reports Source: The Journal News (Thursday March 27, 2014)
News coverage of Consumer Reports’ latest hospital safety ratings. Three local hospitals were among seven in the New York metro area that scored 30 or below on a 100-point scale.
- C. diff in Our Kids: A Call to Action Source: CDC (Friday March 7, 2014)
Guest blog post for CDC by Christian Lillis, co-founder of the NY-based patient safety organization, Peggy Lillis Foundation. Christian is a member of CU’s Safe Patient Project activist network.
- CDC: Antibiotic Overuse Can Be Lethal Source: Wall Street Journal (Tuesday March 4, 2014)
The overuse of antibiotics in U.S. hospitals is putting patients at risk and helping to fuel the creation of deadly superbugs, according to a government report released Tuesday. NY patient safety advocate and member of CU’s Safe Patient Project network, Mary Brennan-Taylor, quoted. Mary lost her mother in 2009 after she was diagnosed with multiple hospital infections.
- Doctors Start C-Section on Not-Pregnant Patient Source: NBC New York (Friday April 27, 2012)
Doctors at a Manhattan hospital began cutting into a patient for a C-section only to discover the patient was not pregnant, a News 4 I-Team investigation has found.
- Article by Christian Lillis: Slaughter doing her part to fight superbugs Source: Democrat and Chronicle (Sunday September 29, 2013)
Christian Lillis of NY, who lost his mother to C.diff infection and formed the Peggy Lillis Memorial Foundation, says that Rep. Louise Slaughter is a leader in fighting antibiotic resistant superbugs. C.diff is a potentially deadly infection that kills thousands of Americans every year. Luckily the infection is preventable through handwashing and better use of antibiotics.
Research and Reports
- What to Do if You Have a Concern about Quality in a New York Hospital Source: Informed Patient Institute (Thursday March 28, 2013)
This tip sheet explains steps you can take within the hospital to deal with your concerns about quality of care. It also tells you how to contact the places that regulate or oversee hospitals. You can also consider filing a lawsuit, but that is not the focus of this tip sheet.
- New York Hospital-Acquired Infections Reports Source: New York State Department of Health (Saturday September 1, 2012)
- Report: Sick, Scared and Separated from Loved Ones Source: NYPIRG (Wednesday August 8, 2012)
New report by New Yorkers for Patient & Family Empowerment and the New York Public Interest Research Group urging hospitals to have patient-centered visiting policies and to respect the patient’s right to decide who can visit.
- Video: A New Angle on Patient Safety at UB: Turning tragedy into advocacy so that future patients benefit
Patient safety advocate, Mary Brennan-Taylor of New York, turns the loss of her mother to hospital-acquired infections into a force for change within the University of Buffalo’s medical school. Using her mother’s case as a teaching program, UB students looked for evidence-based best practices to understand what went wrong and then acted out the way it could have and should have turned out.
- What To Do If You Have a Concern About Quality in a New York Nursing Home
Steps you can take if you are concerned about the quality of care in a NY nursing home.
- What to Do if You Have a Concern About the Quality of Care from a New York Doctor
Steps you can take if you are concerned about your care under a NY physician.
- State reports on mortality rates for adult cardiac surgery and angioplasty procedures
In 2006, 11,929 cardiac bypass surgeries were performed with a combined in-hospital and 30-day mortality rate of 1.92 percent – down slightly from 2.02 percent in 2005. In 2006, the number of Percutaneous Coronary Interventions procedures increased to 57,944 from 56,058 in 2005. The 2006 combined in-hospital/30-day mortality rate was 0.87 percent.
- NY Comptroller finds many hospitals underreport medical errors
A comprehensive study issued today by the Office of the Comptroller William C. Thompson Jr., found that many New York City hospitals substantially underreport “adverse events” to the New York State Department of Health (DOH).
- Like Night and Day - Shedding Light on Off-Hours Care
The consequences of service deficiencies during off-hours include higher mortality and readmission rates, more surgical complications, and more medical errors. Given the health care industry’s renewed focus on ensuring patient safety and providing high-quality medical care, why hasn’t the situation changed at the “other hospital”?
- Health Guide: MRSA Infection
Background information on causes, symptoms, treatment, and other resources